My name Katora Jenee I am 14 years old. I was born with a serious skin disorder called Epidermolysis Bullosa short for (EB). This disorder causes my skin to constantly be hyper sensitive to heat even touch. I live with chronic pain, doing the simplest things like bathing, walking even eating can aggravate my skin condition and cause my throat to blister. I often wish I could be like other kids when I am looking out through the window, desperately wishing to play and be free like an ordinary child. Because of my condition I have been raised in an secluded environment from every day life. It hurts me to have to live this way but God has blessed me with such an amazing talent I sing in the youth choir at church. I am really insisting on going to public school but it frightens my parents a lot. Although I have been raised in a sheltered enviroment I am a very strong minded person and even with my condition I am determined to become a R&B/Gospel Singer. I have accepted my condition and still will continue to pursue my hopes and dreams and I know with Gods help I will succeed. To myself I have a strong heart and a relentless passion and I am glad that through this I have both my parents to stand by me through whatever path I end up on. I hope that I will be heard and give hope to all the other people in the world living with the same condition or any other condition. This is why I am writing this letter because I have an opportunity to share my story, and my struggles and dreams with so many other people. All I can do is share my strength and upcoming adventures and I hope you know that with faith we can over come anything when we have Jesus in our lives. 'For my strength lies in me, by knowing that through everthing I go through there is a purpose for me in life because I have the ability to do whatever it takes for me to be the person I know that I can be with the help of God and my Family in my life. Thank you for hearing my story. Sincerely, Katora Jenee.
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